Unfortunately I am still far from well, as not only do I have the germ still, but now it's also affecting my Crohn's badly. It's all rather frustrating, and I'm getting pretty impatient now. Just want to be better now as it's no joke anymore. I guess the only good thing about it is the fact it has made me appreciate just how well I was feeling most of the time, before I caught this latest germ, compared to the years of suffering I had before. I cannot really believe how I managed to get through each day before I had my last op and also started on Remicade/Infliximab. I think I was just so used to being and feeling so ill that I had basically blocked it out. Maybe I was numb to it in a way. Who knows?! However, I still can't believe how I managed to keep so positive most of the time. I guess I should take comfort in the power of mind, and how you can almost "trick" yourself into believing you are ok, when really you are extremely ill. It can be dangerous though - as my specialist nurse once pointed out to me when her jaw literally dropped open at the poor sight of me. She thought she was looking at a skeleton, which she was, but I just hadn't noticed! Sometimes it takes others to point out how bad things have become. I just hope that this present bout of Crohn's doesn't get too bad. I could really do without that.
About Me
- Ruth
- I'm an english girl currently living in the amazing french alps. I am trying to make the most of this fantastic opportunity, and am enjoying having a break from my old life for a while. I have been using my time here to reflect and to hopefully heal some of my health problems (I have Crohn's disease among several other conditions), and I'm attempting to tread an exciting path of self-discovery and hopefully some healing along the way. I have many interests/hobbies and at times struggle to find time for them all, but at the moment I'm taking a break from many of them and enjoying what my beautiful surroundings have to offer.
A view from the top where I live
3 comments:
Hello Ruth and thanks for your thoughts. I'm sorry you're still not feeling too good and hope that things improve soon for you. You're right that often we tend to block out our illness and only respond when people react with shock at our appearance - it happened to me at work today - I thought I was looking ok - despite how I was feeling - my colleagues put me right!! Bless em!
Anyhow - take care and get to feeling better soon.
Gary
Hey Ruthy,
I'm glad that Remecade is semi working for you. I couldn't take it due to a severe knee reaction. I am the same way with my Crohn's.I block it out until I'm so ill that I can't function and that usually puts me in the hospital. When you get sick with taking an immune suppressant, man you really get sick. I take Humira and that seems to have helped a lot with my CD symptoms. If it makes you feel better, I too am a walking skeleton. I don't know how any body can be fat with this disease, but I've seen it. I've been sick for the last 6 months. When you've been sick that long, you really forget what normal feels like. And when you are "normal" it feels like you are on some kinda high cause you feel so good. Then you realize how sick you were. Anyways, thanks for listening. Your friend state side.
Justin
Ruth:
Sorry you are feeling so bad. Prayers and best wishes from across the pond!!
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