Monday 19 May 2008

Crohn's bad

Unfortunately I am still far from well, as not only do I have the germ still, but now it's also affecting my Crohn's badly. It's all rather frustrating, and I'm getting pretty impatient now. Just want to be better now as it's no joke anymore. I guess the only good thing about it is the fact it has made me appreciate just how well I was feeling most of the time, before I caught this latest germ, compared to the years of suffering I had before. I cannot really believe how I managed to get through each day before I had my last op and also started on Remicade/Infliximab. I think I was just so used to being and feeling so ill that I had basically blocked it out. Maybe I was numb to it in a way. Who knows?! However, I still can't believe how I managed to keep so positive most of the time. I guess I should take comfort in the power of mind, and how you can almost "trick" yourself into believing you are ok, when really you are extremely ill. It can be dangerous though - as my specialist nurse once pointed out to me when her jaw literally dropped open at the poor sight of me. She thought she was looking at a skeleton, which she was, but I just hadn't noticed! Sometimes it takes others to point out how bad things have become. I just hope that this present bout of Crohn's doesn't get too bad. I could really do without that.

Friday 9 May 2008

Had my fun - now suffering for it!




It's exactly as the title says - I had my fun of hiking up the mountain, sledging, skiing, a few fairly local days out plus a two-week visit to England and Wales (which I've yet to post about), but now my body is reminding me it was all too much and I'm getting punished!

Feeling very ill now with very high temperatures, chills, shivers, pains all over, diarrhoea, abdo pains, a painful cheek and jaw bone and slight swelling on one side of my face (which I'm not sure if is related to all my other symptoms, or if its sinus-related or worse if it's a sign of a dreaded infection). Also feeling totally exhausted and faint the whole time and have literally dragged myself out of bed to type this (aren't I an idiot!).

However, I haven't typed this for a moan and a whinge (although it may well look like it!). No, I've posted it because I need to point out that whilst I may look like I'm forever having the time of my life (and yes, I do savour the special moments I do have), I do have to pay for it afterwards every single time. But hey, I guess having those good times are worth feeling this ill - I hope so anyway! It would so be nice though if for once I could have a happy time and then not be ill after. That would be such a treat!

Have posted some pretty flowers to try and make myself feel a little better. Hope you like them, Ruth xx




Monday 5 May 2008

Skiing somewhere new


Here I am, skiing at another resort around 1 1/2 hours away from where I live. There were some stunning views as usual. I'm still only a novice, but am getting better as am managing red runs now as well as the green and blues. I love the feeling you get when you have the wind rushing through your body when you are whizzing (fairly) fast down the slope. It is a wonderful free feeling, and nothing else seems to matter. It is a great way to experience truly living in the moment.

Thursday 1 May 2008

Some photos of the hike!

Ok, so here are some of the photos of the hike. It starts off fairly easy and then gets harder!



What a gentleman carrying our sledges, especially on this steep bit!


The above two photos are me at the top! Sorry about the naughty one!

This is me after we had sledged all the way down - on the pistes this time